SAPV-Register Bund: Register for palliative homecare data

>Bundesarbeitsgemeinschaft SAPV e.V.

Register dataTrust center

Specialized Outpatient Palliative Care (SAPV) was legally regulated in 2007 and has since developed in a very heterogeneous manner based on the framework that existed at the time. Since 2022, there has been a standardized nationwide framework agreement that defines requirements for service delivery, quality assurance measures, and the key elements of remuneration. In order to continue ensuring the quality and nationwide availability of care, the SAPV Registry Germany aims to systematically collect SAPV care data from all federal states in Germany. The registry is intended to continuously document the quality of SAPV services in Germany, enable comprehensive collection and analysis of care data, and thereby support quality assurance and the patient-centered development of this area of palliative care.

In addition, the registry is intended to create opportunities for in-depth research into SAPV within the context of health services research. This could provide further impetus for continuous improvement in the spirit of a learning healthcare system and the ongoing development of care quality.

The PMV research group operates the technical infrastructure of the registry on behalf of the Bundesarbeitsgemeinschaft SAPV, manages the integration of care data from all participating SAPV teams in Germany, and prepares the data for further analysis. Through PMV’s own trusted third party, patient inquiries under the GDPR are also processed, and—when research is conducted using registry data—data linkage (e.g., with billing data from statutory health insurance providers) is implemented.

Duration: 2025–2028
Project partners: Onkosio
Data: Register data, Trust center, Data infrastructure, Data linkage